By Priyanka Guha & Clicked By Azahar:- A press conference is held in Rotary Sadan Kolkata about Thalassemia awareness and the launch of a book ‘Dengu theke Banchao’ of Dr. Saumya Bhattacharya too. Dr. Bhattacharya has said that this book is written for awareness of mass and will be very much useful as guideline for prevention and treatment of Dengu.
Thalassemia is one of the purely genetic diseases and and actually Thalassemia Major is a genetic disorder in which formaion of red blood cells is reduced and defective. This happens as a result of getting one bad gene from parents which means they have to be carriers of the diseases. The children who are affected with Thalassemia need to be supported with lifelong blood transfusion and managing the complications of multiple blood transfusions the most important being iron overload.Blood test complete Haemogram can raise the suspicion and HPLC test can confirm the presence of carrier state. Many people are now doing the test before marriage. If both parents are carriers the risk of having a baby with Thalassemia major 25% in every pregnancy.Although tests are available in early pregnancy (before 12th week) to check if the baby is affected and if the test is positive,the decision of abortion may be taken. Bone marrow transplantation is the only way to cure the diseases. The option is limited to families who have other unaffected children and are complete match on HLA testing.
counseling is needed in this treatment. In this circumstances Dr. Soumyo Bhattacharya,eminent hematologist and head of the department of hemato-oncology,organizes Thalassemia Patients meet ‘Sanjiban’ in every year on behalf of Picnic Garden Lila Seva Society. In this year this is held at Rotary SadanKolkata. The idea is to take the patients and their relatives away from the depression,anxiety,fear, and expose them to a world of amusement,hope and enjoyment.In this gathering the patients and eminent artists,perform at same stage. The overall impression is the victory of the hope and optimism over depression and defeatism.About hundreds of patients have been present to this meet. In this Meet, the patients and their relatives share their experience of war against this disease. After this meet, the cultural program has been performed with full of joy.
As a conclusion Dr. Soumya Bhattacharya has said that such type of patients meet inspires the patients and their facilities to fight against this lifelong disease. He has also said that quality health care for all patients are necessary so that they receive appropriate treatment and drugs.